This roller coaster is more then I feel like I can handle today. I am fighting as hard as I can, but how long can I keep going like this???
So last Friday Grace had her neuro testing done. Now we sit and wait and wait and wait for the results to come back. I talked to the Doctor's assistant today and clarified that Grace dose for sure have a ABI. It is diagnosed for sure. Grace falls into the mild category. Don't let the mild fool you, it is still pretty serious. I am hoping that having an actually diagnosis will help us fight the insurance company.
We found out that Grace is covered for the next week at Hogwarts. However we do know that the insurance is getting very anxious to get her out. Here is my problem. Grace has done really well this past week. That would seem like good news right? Well the insurance thinks one good week means that she is all better and ready to go home. WRONG!!!! Look at the past several months. She is good for a week or two and then completely crashes again. I have started calling all over to several different agencies to look for help. I have called the county and the state. My biggest concern is how do I bring Grace home when I don't feel it is safe to have her here. She doesn't hit at Hogwarts because she knows she will be put in a small locked room by her self. I can't do that at home. Its child abuse if I do it!!! Go figure. Also if she comes home and hurts her brother or sister, then I am in trouble for not protecting them. WHAT AM I SUPPOSE TO DO???? I feel like I am being set up to fail. I am so ready to scream and cry. I want her home, but not until she has had time to get the help she needs. I really feel like I am ranting today. I am so emotionally and physically exhausted from telling Grace's story over and over and over again. It is not getting me anywhere!!! I just hope that someday the right person hears this and has the right answer for all of this. I am just a Mom trying to save my child.
On the plus side we are going to bring Grace home for two nights. This is to see maybe she is more ready than we think she is. We'll see. I pick her up tomorrow night and we take her back on Saturday morning. Here's hoping we all survive. The good thing is, if we have any problems we just take her back to Hogwarts. At least I know there is help there if I need it. I am really excited to have her home. I hope that it goes well. I think we all need a little hope right now. Please pray for us this weekend!!! One of two things will come from this weekend, One she will do great and we will look forward to bringing her home, or Two it will be awful and insurance will agree to keep her at Hogwarts. I guess we don't have much to loose!!!
Sorry for the ranting and rambling. I am just so drained today.
I love this blog Liz. It's tough to read but good to know of others struggles. Sometimes you just have to take a deep breath and have a good cry. Take care of yourself and let the Spirit lead. God will amaze us at times. Thanks for sharing such a personal and up close look. No doubt it will benefit many. By the way, Grace is a beautiful girl. I really love her picture.
ReplyDelete