I'm Back

Sorry I've been MIA. I haven't forgotten to blog I promise. I went away for a few weeks. Some much need rest and relaxation.

The past almost two months have been very much more of the same. Fighting to keep Grace at Hogwarts. At the same time we are seeing a blow up every three weeks with out fail. You would think this would make the insurance say "well lets get past three weeks before we even think of sending her home". Nope, every time just before we know she is going to blow up the insurance tries to stop paying. It is so frustrating. Every time I feel like I can't fight this battle any longer someone helps me find a way to keep going. I am truly very blessed with an amazing support system in my life. I thank all of you for the strength that you give me. Just knowing that people care enough to read this blog is amazing to me.

While I was away on my trip the insurance company quit paying for Grace's care. Not only did they quit paying, they waited to tell us until 6 days later. We couldn't believe that they could do this, but they did. We had been blessed with some finical assistance from family and friends so we made a payment to Hogwarts. At the same time we appealed the denial. Amazingly we won the appeal. From what we have been told, that almost never happens. Thankfully we could keep going. The crazy thing was they denied coverage 5 days after Grace had a massive melt down. It was the worst melt down any of us had seen and we all thought there was no way the insurance could deny coverage after that. Wrong again. Good thing both Dad and I are good at fighting. Now as we are approaching the three week mark again they are telling us this is the end. This system is so broken. In the news everyday you see stories of people who completely lose it and do something that makes us go "what were they thinking" or "Why were they even able to do that"? The answer is because that mental health is so misunderstood. Its tabo and no one wants to talk about it, let alone fix it. Everyday people who are a danger to them selves or to others are released from institutions because it is so expensive and an insurance company can decide their fate. Many people choose to not take their medications and get judged for that. What so many people don't understand is that many of these people are not diagnosed early enough. We are truly very blessed because we are trying to help Grace early on with all of this. The doctor and therapist have said that early intervention is important for Grace to have a happy and successful life. So we fight, and we will keep fighting.

Grace's team is trying to find the right balance of medication and therapy to help Grace. However this is a long and very difficult process. Also a lot of trial and error. They have to constantly watch Grace's levels through blood draws. I can't imagine having her at home and taking her to therapy 3 times a week, and to several doctor's appointments, as well as taking care of everything else in day to day life. Not only that, but Grace is very hard to hold down when she is having a melt down. I wonder if the insurance company will pay for someone to be here with us to help us when she is blowing up? Simply we can't do this on our own right now. The diagnosis that are being discussed right now are Autism, Bi Polar, TBI, and ADHD. Any one of these alone is a lot to handle, but all of these together is too much.

At this point we feel like we are running out of options. We feel like it is not safe to bring Grace home, and we can't afford to keep Grace at Hogwarts. The monthly cost is so scary. I wanted to cancel my trip that i just went on, but it was already paid for before any of this started. Dad and my therapist and many of you told me and supported me in my time away. I am glad I went and I had an amazing time. Really the time of my life. I feel as if I can face all of my reality once again. At this point we feel our only option is to ask for help. We are starting to fund raise to try and keep Grace at Hogwarts as long as the doctors feel she needs this level of care. I will be honest, its about $10,000 per month for her care. We have set up an account on gofundme.com we are also starting to plan a dinner and action event. (more details to come)

We will fight to do what ever we can to Save Grace.

http://www.gofundme.com/4ppzx4